Friday, January 15, 2021

Pietro’s Fight Raises Funds for Duchenne Muscular Dystrophy Research

The co-founder of, Edgar Alacan oversees sales for the company he has expanded from a startup to a thriving operation with $40 million in annual revenue. Apart from his professional responsibilities, Edgar Alacan serves as a board member for Pietro’s Fight, a charitable organization committed to fighting Duchenne muscular dystrophy.

Founded by Dayna and Manni Scarso after their son Pietro’s diagnosis, Pietro’s Fight raises money to fund transitional research. Working with the world’s leading scientists, the organization aims to accelerate the clinical trial process in order to make life-saving drugs accessible to young boys with Duchenne.

Thanks in part to funding from organizations like Pietro’s Fight, gene-based therapies and RNA-based technology have increasingly been used to extend life expectancies for children with Duchenne, while new therapies such as antisense-mediated exon skipping continue to show promise for treating dystrophic muscle. To read about Pietro’s family’s journey or to learn more about Duchenne muscular dystrophy, visit