Tuesday, February 8, 2022

DMD Awareness Through PietrosFight

Edgar Alacan is the co-founder and managing director of day-to-day running operations at Jets.com. Alongside work, Edgar Alacan participates in community initiatives and sits on the board of directors at PietrosFight.Org. a Duchenne Muscular Dystrophy (DMD) awareness organization.

A genetic disorder, DMD presents as gradual muscle degeneration and weakness. The muscle cells holding protein, dystrophin, deteriorates, leading to early muscle problems, usually from two years of age, in jumping and general locomotion, with a wheel-chair aid necessity by age 12. Progressing symptoms affect other organs, including distal and extremities muscles, the pulmonary system, leading to respiratory failure.

Founded in 2012, PietrosFight.org aims to create and increase awareness on DMD and raise funds towards research efforts on treatment and alleviation. Donation modes include cash and sponsored events. Examples of the latter are the December 2020 $25 draw to win a chance for a two-hour consultation from custom interior designer Mrs. Maria Barone and the 2022 Superbowl Box fundraiser at $500 a box.